Fragile X Clinical and Research Consortium

Description

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A Fragile X clinic provides individuals and families affected by one or more of the Fragile X-associated Disorders with evaluation and care supported by the latest medical, educational, and research knowledge available. All of the clinics provide medical services (including medication evaluation and consultation) supervised by a MD. Multidisciplinary services and/or referrals such as occupational therapy, speech and language therapy, behavioral therapy and genetic counseling are available within the institutions. Many of the clinics also participate in collaborative research efforts with other Fragile X clinics and professionals. All of the clinics have an emphasis on fragile X syndrome while also providing services and/or referrals for fragile X-associated tremor/ataxia syndrome (FXTAS) and fragile X-associated primary ovarian insufficiency (FXPOI).


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