vhl.org - Information & support group for Von Hippel-Lindau disease
About vhl.org
The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. Local family support chapters exist in regions of the U.S. Local chapter meetings are scheduled periodically. International VHL Support Organizations are established on six continents. We are strong because of our many volunteers, mostly families living with VHL, health professionals, and friends.
