TeamHartley.co.uk
Title
TeamHartley
Description
In late November 2003 the 4 Hartley sons (Joshua - 12 , Nathan - 10, Daniel - 8 and Luke - 4) were diagnosed with a rare genetic conditions known as X-Linked Lymphoproliferative Syndrome (XLP) or Duncan Disease. This is very rare with only around a 100 families world wide being diagnosed (although it is believed that XLP is massively under prescribed). Without treatment it is unlikely that the boys will make it into and through their teen years. The 'cure' treatment is a Bone Marrow Transplant.
