Tcconnection.org
Title
Treacher Collins Connection
Description
Mission: To connect, educate and support the global community of people with Treacher Collins syndrome by providing medical and networking resources, while imparting to our children the strength, courage and importance of not allowing a facial difference to define who we are.
Treacher Collins: Treacher Collins syndrome is a genetic craniofacial syndrome that is characterized by a range of distinctive facial anomalies. The main characteristics of TCS are downward slanting eyes, small lower jaw, and malformed or missing ears. These anomalies cause hearing, breathing, and eating problems. Individuals and families also struggle with the psychological aspects of having a facial difference. About 1 in every 10,000 babies is born with TCS. For more information about Treacher Collins syndrome and to view personal experiences of people with TCS, please visit Amie's site at: www.treachercollins.org.
Vision: Each event is essential in many ways; not only is it important for people with TCS to meet others like them, it is equally important to network about medical doctors, procedures, and hospitals. The TCC will organize at least one yearly event to bring together those with TCS and their families.
Languages
English
Contact
- Treacher Collins Connection
-
- Medford MA
- US 02155
-
- +1.6176206366
