ReachingOutFoundation.org
Title
Cystic Fibrosis-Reaching Out Foundation - Cystic Fibrosis Support and Information
Description
In 1992 Susan Burroughs, an adult patient of Cystic Fibrosis (CF), recognized a need among CF patients to connect with other patients and families for information and support. With that in mind, she developed a newsletter called Reaching Out. For over 6 years Susan produced and distributed the newsletter on her own. During that time the distribution grew from a handful of subscribers to over 1,000 CF patients and families all over the United States.
During her own battle with CF, Susan began a tube-feeding regimen in 1998 to maintain her weight. It cost her family an additional $150 a month because her insurance did not cover liquid nutrition. While her family could make the necessary adjustments to their monthly budget, she realized that many CF families were compromising their children's health because they could not afford the additional financial burden. She also discovered that, since some CF patients take as many as 20 prescription drugs at a time, many patients were forfeiting medication because their families simply could not afford the mandatory co-payments.
For years Susan campaigned and raised money for the Cystic Fibrosis Foundation's research efforts to find the cure for CF. After watching many of her friends die because of the poor quality of life of during their illness, she realized there is much work to be done while waiting for a cure. This was the impetus for the Cystic Fibrosis-Reaching Out Foundation, Inc., an all-volunteer 501(c) 3 benevolent organization to help CF patients and families.
Contact
- Reaching Out Foundation, Inc
-
- Lilburn Georgia
- United States 30047
-
- +1.7703813710
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