Ebanusa.org
Title
EBAN: Epidermolysis Bullosa ACTION Network
Description
Excerpted from the website:
- This information is for people who have epidermolysis bullosa (ep-ee-der-MOL-eh-sis bull-O-sa, often called "EB"), parents and caregivers of children with EB, and others interested in learning more about the disease. The information herein describes the disease and its symptoms and contains information about diagnosis and treatment, as well as current research efforts supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and other components of the Department of Health and Human Services' National Institutes of Health (NIH). It also discusses issues such as skin care and quality of life for people with EB. If you have questions after reading this, you may wish to discuss them with your doctor or a dermatologist (a specialist in treating skin conditions).
Languages
English
Address
- 43739 6th St E
- Lancaster CA 93535 US
Additional Information
Related Domains
External Links
- Alexa: Ebanusa.org
- WHOIS for Ebanusa.org
