EBinFoWorld.com has information about the disease, Epidermolysis Bullosa
Title
Nicky's EB Info World ~ Welcome to the World of Epidermolysis Bullosa
Description
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Epidermolysis Bullosa is a rare genetic skin disorder. One thing to describe its rareness is that a doctor or a nurse can be working a lifetime and never bump into this condition. It is estimated that about 10,000 Americans, mostly kids, have some form of EB. With modern medical care, some with the worse kinds of EB can live into their thirties. Unfortunately, by this age most will succumb to a particularly aggressive skin cancer (Squamous Cell Carcinoma) that is somehow touched off by EB. Of these 10,000 effected, less than 300 have the same kind as Nicky's (he has the Hallopeau-Siemens subtype because of the webbing and contracting of his fingers and toes), making the RDEB form so rare than only one out of every one million babies is born with it.
The skin is made up of a number of different layers. The outer is called the epidermis; the inner layers are the dermis. "Bullosa" is simply the name for a blister and "lysis" means breakdown. Hence, Epidermolysis Bullosa means the breakdown and blistering of the epidermis.
Languages
English
Contact
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- Lancaster CA
- United States 93535
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- +1.6617295965
