CureAsps.org
Title
Cure Alveolar Soft Part Sarcoma International (iCureASPS)
Description
Excerpted from the website:
- “Cure Alveolar Soft Part Sarcoma International” aims to bring together Alveolar Soft Part Sarcoma (ASPS) patients, their families and friends who have a shared interest to find a cure for ASPS. We actively look for institutions and laboratories that are engaged in research aimed to find a cure for ASPS and support them by funds and shipments of fresh or frozen ASPS tumors from patients who agree to donate their tumors for research. Our website serves as a platform that provides updated information about the research and therapies for ASPS patients and their medical caregivers. Using this knowledge, patients can make better decisions regarding their ASPS treatments. Using our online Forum, members can share their experiences and get information and group support from the ASPS community all over the world. The information network thus generated through patients’ communication helps to collect valuable information about this very rare disease and is a key to the success of finding the best available treatments and ultimately to finding a cure.
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