ALicjA.org
Our daughter Alicja was born with CHARGE syndrome. Key words: CHARGE syndrome, genetic pattern of birth defects, causes damage to many of the affected person’s organs, Coloboma, heart defects, profound hearing loss, ear malformation, eye lid problems, balance problems, bilateral semicircular canal aplasia (absence), developmental delay, paralysis of some of the facial nerves and facial asymmetry, severe swallowing problems, laryngomalacia, vocal cord paralysis, right leg malformation, club foot and absence of the right tibia, shoulder and spine muscles weakness, sickness, illness
