22q13.org
About 22q13.org
Welcome to the Official Web Site of Phelan-McDermid Syndrome and 22q13 Deletion Foundation. We are a growing, worldwide network of loving, caring parents and caregivers who are dedicated to making sure our children achieve the most that they can, and then some. If you are a family with a child who has been recently diagnosed with Phelan-McDermid Syndrome, the 22q13 Deletion Foundation would like to welcome you. We are here to help.
