PorPhYrIa-Europe.com
Title
European Porphyria Initiative
Description
The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria, focusing in particular on the prevention and treatment of acute attacks, to provide information and support to families affected by porphyria, and to support and encourage medical research
Contact
Administrative:
-
- CHANTEPIE FR
- France 35135
-
- +33.299228340
Registrant:
- ORPHAN EUROPE
-
- PARIS La Defense Cedex 70 FR
- France 92046
Additional Information
Related Domains
Categories:
- Aip
- Ala
- Abdominal Pain
- Acute Attack
- Conditions And Diseases
- Coproporphyria
- Epi
- Français
- Genetic Disorders
- Génétiques
- Health
- Hematin
- Heme
- Hemin
- Hepatic Porphyria
- Maladies
- Normosang
- Pbg
- Porphyria
- Porphyrie
- Porphyries
- Porphyrin
- Protoporphyria
- Red Urine
- Santé
- Skin Lesions
- Support Groups
- Variegate
- AIP
- ALA
- Conditions and Diseases
- EPI
- PBG
- World